Hi! My name is Chloe Tear, I am 19 years old and I'm a university student studying Psychology and Child Development. I have mild cerebral palsy which affects the left side of my body as a result of being born 8 weeks early and weighing 3lb 3oz, as well as epilepsy, chronic pain and impaired vision. During this blog, I will talk about what it’s like being a student who may face a few more hurdles than most. I hope you're able to follow my educational journey because anything can happen!
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Hi, hey & hello...
This my first post as I enter the hopefully wonderful world of blogging. Blogging has always been one of those things I have wanted to get round to doing but before now other things have taken its place. The aim of blogging is to express my views and to use it as a hobby which can be built up over time. Been a student with mild cerebral palsy has its challenges and extra hurdles but can be reward and I wouldn't change it for the world. (Good job really because I'm stuck with it)
Hi, I'm Chloe!
I have mild cerebral palsy which affects the left side of my body. I was diagnosed with it when I was in year 2. I wore a splint on my left leg during the day up until I was in year 6. I then changed to orthotic in my shoes and a night splint and this is still how it is at the moment. Over the years I have had Botox injections every 6 months for a few years and there was talk about serial casting but it never happened. I was born 8 weeks early and was in intensive care for a long time. They said if I did pull though then I wouldn't be able to walk, talk or do anything for myself. 15 and a bit years later I can talk (probably far too much, the challenge is to get me to stop). I can walk even if I seem to like the ground a lot more and fall over a lot. Finaly I am almost completely independent. Don't you just love it when you are able to prove them wrong! I have physio every 3 months and see my occupation therapist quite a lot at the moment due to school become more difficult.
I'm glad I have final jumped on the train of blogging and who know what the future holds.
In order for me to complete university away from home, and get to lectures in one piece- a PA (Personal Assistant) has been vital in me being able to be as independent as possible. I have actually enjoyed the process of hiring PA’s despite it being a little stressful to find one in time. Yet, when looking for a PA, it had to be someone who could drive as well as being capable to suit all of my needs. By having a car it would mean that I could get to hospital appointments easily. However, when advertising it was often extremely hard to find someone who was fairly young (not that this is essential!), was capable of the job, could drive and was okay being with people aged 19- 21 all of the time. After 30+ applications it became clear this was all quite a big ask! Who knows my full medical history? Who would have experience in Cerebral Palsy, seizures and visual impairment? Who can drive and wouldn’t mind being with young adults all day? Who would actually quite enjoy lectures? There is a…
Dear Chloe, You're currently 7 years old and are about to embark on a journey of a lifetime. This journey will show you the world in a completely new light, it will show you things you never thought you would see, and allow you to meet people you might otherwise have never met. Unfortunately, this journey is tough, it will test you past the limits you thought you had and cause so much frustration and upset- but you are capable of overcoming this, you can find tremendous joy in every aspect of your life. You have just been diagnosed with mild cerebral palsy. You have never heard of this, and have no idea what it is! But don't worry- mum's done lots of research and has your back! These hospital appointments may seem strange, and unnecessary as you don't think anything is wrong, but it will all become clear with time. Ever wondered why you walk on your toes and fall over more than your friends? Ever wondered why you can't hop, struggle with maths and feel tired? Or hav…
I am a part-time wheelchair user, this means that one day I can use my chair, and the next I can be walking with my stick. Being able to use a wheelchair on a part-time basis allows me to managed my energy levels and reduce pain, allowing me to function more effectively in everyday life. I am exactly the same person whether I use my stick or my chair, so why does the behaviour of others sometimes change?
Over the last few years, I have noticed people act differently to me depending on the equipment that I am using at that time, yet it was when doing my food shopping, of all things, that made me realise what those differences were.
I've noticed that when I use my stick, people don't tend to mind. I sometimes get a few inquisitive looks as they tried to figure out why a 19- year- old is using a walking stick, but apart from that it is fine. People in shops talk to me, telling me how much the items cost and expect me to pay- good job really considering it is my food for the week…