Hi! My name is Chloe Tear, I am 20 years old and I'm a university student studying Psychology and Child Development. I have mild cerebral palsy which affects the left side of my body as a result of being born 8 weeks early and weighing 3lb 3oz, as well as epilepsy, chronic pain and impaired vision. During this blog, I will talk about what it’s like being a student who may face a few more hurdles than most. I hope you're able to follow my educational journey because anything can happen!
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We say thank you to the doctors
We say thank you to the doctors for saving our lives,
they are the symbol of healthcare that is provided and projected,
but do we remember the others who help just as much?
Do we say thank you to paramedics for holding our shaking hand at a time of need?
Are the A&E staff forgotten as they are rushed off their feet,
but also to provide a drink and toast to get us through one of the hardest nights we may face?
Then there are the porters who reassure disorientated patient moving wards,
carefully pack up your things whilst you sleep as peacefully as possible.
You may not be leaving that week, but in their caring hands that hope you move forward.
The nursing staff who see you daily, making your day and notice a change in character,
or those who congratulate an improvement no matter how small that may be.
The smallest thing seems like mountains, but from the summit, oh what a lovely view it is.
Thanks must be given to the catering staff for the food they provide, this is needed,
but remembering how you take your morning coffee is the caring nature of the job.
How they are so cheery on the morning round can set your mood for the day.
The friends and family who take the time to visit our new home, even just an hour,
it raises our spirits and gives us something to focus on, getting us through the long day.
We are sorry if we are asleep right through your stay, your presence is still appreciated.
Physiotherapists who fight with misbehaving muscles and equipment to retain mobility,
those extra few steps on the corridor, they get you to the stairs of recovery.
The hours they put in can determine the years of rehabilitation and end result of recovery.
Let's not forget the student nurses, they are choosing a career to benefit others,
how we as patients can shape their outlook and mould them into the nurses they go on to become.
We may be the first patients they see but definitely won’t be the last, thank for choosing us.
Why not also thank the patients for the wisdom, time and compassion shown through your time together?
The tales that can be told show more insight into life than you may ever realise.
Friendships made over sickness, that then may last through to health.
In order for me to complete university away from home, and get to lectures in one piece- a PA (Personal Assistant) has been vital in me being able to be as independent as possible. I have actually enjoyed the process of hiring PA’s despite it being a little stressful to find one in time. Yet, when looking for a PA, it had to be someone who could drive as well as being capable to suit all of my needs. By having a car it would mean that I could get to hospital appointments easily. However, when advertising it was often extremely hard to find someone who was fairly young (not that this is essential!), was capable of the job, could drive and was okay being with people aged 19- 21 all of the time. After 30+ applications it became clear this was all quite a big ask! Who knows my full medical history? Who would have experience in Cerebral Palsy, seizures and visual impairment? Who can drive and wouldn’t mind being with young adults all day? Who would actually quite enjoy lectures? There is a…
Dear Chloe, You're currently 7 years old and are about to embark on a journey of a lifetime. This journey will show you the world in a completely new light, it will show you things you never thought you would see, and allow you to meet people you might otherwise have never met. Unfortunately, this journey is tough, it will test you past the limits you thought you had and cause so much frustration and upset- but you are capable of overcoming this, you can find tremendous joy in every aspect of your life. You have just been diagnosed with mild cerebral palsy. You have never heard of this, and have no idea what it is! But don't worry- mum's done lots of research and has your back! These hospital appointments may seem strange, and unnecessary as you don't think anything is wrong, but it will all become clear with time. Ever wondered why you walk on your toes and fall over more than your friends? Ever wondered why you can't hop, struggle with maths and feel tired? Or hav…
Like any new mobility aid, the cane was going to take some time to get used to. I may not have liked the idea of it all to begin with, but I felt the same when I started using a wheelchair and a walking stick- there seems to be a theme here! Yet, this felt slightly different, entering a new medical world of visual impairment.
After being registered as partially sighted in February, it was advised that using a white cane would be beneficial due to how my visual impairment affects my sight. I am not going to lie, this was a shock. If you have read previous posts on this then you'll know that I did decide to learn how to use a long cane in an attempt to stop myself tripping up over things, but I was quite apprehensive about using a long cane.
To begin with I did find it helpful during the training sessions and saw how it could be really useful for myself, but using it was another thing all together. The first time I used my white cane was when I was looking in a few shops with my fam…